Survivor Feature: Meet Skylar
There's nothing like seeing people you know and care about overcome hardship. This next Survivor feature came into my life over a decade ago. Since then, I've watched him grow into a man and deal with his battle with sickle cell anemia with courage and faith. He was the first person I ever knew with sickle cell, and that's why I wanted him to be my first male feature on the blog. Readers, meet Skylar Babino.
Tell us about yourself:
Hi, my name is Skylar Babino. I’m a street photographer born and raised in Atlanta Georgia.
What is sickle cell anemia and how has it impacted you?
Sickle cell anemia is a blood disorder.
I guess I would say the biggest impact it has on me is the daily struggle with pain and trouble breathing. It has also caused other complications with organs failing. As a survivor, it honestly scares me more and more each day. The more I achieve, the more I have to lose and now I’m more scared than I've ever been to leave ones I love before I get a chance to experience goals in my daughter's life.
Despite it's impact to your health, you've still managed to keep fighting. What's your advice to others dealing with a similar situation?
The best advice I can give is to find a therapist; you will need it to get through this and to help stay positive. This is a long and stressful journey and we all need help.
How has faith played a role in your journey?
I’ve learned the true meaning of "Faith without works is Dead." The battle with my faith has been a tough one, but remembering I could have been dead before 18 helps me remember the role God plays in my life. If I believe in him and keep working to be better he will work to keep me healthy enough to fight my battles.
Share your favorite affirmation with our readers and why it means so much to you.
I say daily affirmations, but the one I choose to share is "I Love myself." Growing up with a disease you tend to look at yourself as others see you sometimes. Whether they see my yellow eyes or see me as a sickly person or as someone weak, you must fight those negative thoughts with positive words to assure yourself that you are loved and that you deserve love.
Pretty Lane believes in community and supporting Survivors. What are some ways readers can support the Sickle Cell community?
By giving to charity but more importantly giving your time if you can. Go to the hospital and sit and talk to some of these kids who are alone for days or weeks at a time. Go sign up to be a counselor at sickle cell camp. Check up on someone you know with sickle cell because no matter how much they say they're fine, they deal with so much. The same respect and support, people give to kids with cancer, kids with sickle cell deserve the same kindness and respect. Just because you can’t see our pain like everyone else doesn’t mean we don’t suffer.
How can readers connect with you.
You can follow me on Instagram at slimshots_photography
We are truly thankful to Skylar for his courage and transparency. We also appreciate our readers for taking the time to read the testimonies of everyday people. to We encourage readers to learn more about sickle cell anemia. https://www.cdc.gov/ncbddd/sicklecell/facts.html